Sickle Cell Anemia Awareness – Rare Disease Day 2019

Sickle Cell Anemia is considered a rare disease. It is an inherited blood disorder that impacts shape and health of red blood cells According to the CDC Sickle Cell Anemia affect approx 100,000 Americans

Open Letter to Rickey Smiley: ……..and anyone else who thinks dying from Sickle Cell is a Joke.

On Jan 1st comedian Rickey Smiley thought it would be funny to include Sickle Cell Anemia in a joke. During an obituary skit he listed Sickle Cell as an ailment the person who died suffered from.

Sickle Cell Warrior Dylan Celebrates his 5th Birthday and 1 yr with NO Hospital Stays!!!

As I type this Dylan is sleeping in his room with his younger brother.  I think about how many times they’ve been separated because of Dylan’s countless hospital stays.  In fact when I was in labor with his younger brother Dylan was admitted into the hospital.  I gave birth on one floor of the hospital […]

Today We Celebrate 10 Months Since Warrior Dylan’s Last Hospital Stay

It’s a celebration!!! Today marks 10 mos since Dylan has been hospital free! We celebrate every month bc we are sooooo grateful! We are not about that hospital life. Someone asked recently. How is it that Dylan hasn’t had pain in almost 3yrs (Jan 2019 makes 3yrs) but has been in the hospital during that […]