Sickle Cell Anemia Awareness – Rare Disease Day 2019

Sickle Cell Anemia is considered a rare disease. It is an inherited blood disorder that impacts shape and health of red blood cells According to the CDC Sickle Cell Anemia affect approx 100,000 Americans

Open Letter to Rickey Smiley: ……..and anyone else who thinks dying from Sickle Cell is a Joke.

On Jan 1st comedian Rickey Smiley thought it would be funny to include Sickle Cell Anemia in a joke. During an obituary skit he listed Sickle Cell as an ailment the person who died suffered from.

Sickle Cell Warrior Dylan Celebrates his 5th Birthday and 1 yr with NO Hospital Stays!!!

As I type this Dylan is sleeping in his room with his younger brother.  I think about how many times they’ve been separated because of Dylan’s countless hospital stays.  In fact when I was in labor with his younger brother Dylan was admitted into the hospital.  I gave birth on one floor of the hospital […]

The Memory of a Sickle Cell Warrior Princess and Beauty Queen Lives On Through Shak’s Hope

September is Sickle Cell awareness month and all over Facebook Sickle Cell Warriors and their families have changed their profile pictures to add awareness frames.  Warriors are sharing facts about Sickle Cell Anemia and discussions surrounding this “rare disease” are happening more and more frequently.  As we share facts about the disease itself we are […]

Today We Celebrate 10 Months Since Warrior Dylan’s Last Hospital Stay

It’s a celebration!!! Today marks 10 mos since Dylan has been hospital free! We celebrate every month bc we are sooooo grateful! We are not about that hospital life. Someone asked recently. How is it that Dylan hasn’t had pain in almost 3yrs (Jan 2019 makes 3yrs) but has been in the hospital during that […]

Warrior Mom Highlight – Mom Chooses Natural Approach to Treat Her Daughters Sickle Cell Anemia

Warrior Mom Tamika Norman shares her experience with Sickle Cell Anemia.  Her daughter Micah has been diagnosed with Sickle Cell Beta Thalassemia.  Tamika has chosen to take a natural approach to this disease vs the traditional methods of treating Sickle Cell Anemia. “My daughter Micah is an 11 year old with Sickle cell-Beta Thalassemia. She […]

8 Months with NO Hospital Stays – A Sickle Cell Warrior Celebrates Being Healthy & Pain Free

On Oct 2, 2017 I received a call from Dylan’s school. They recorded a fever and I needed to pick him up. I immediately took him to his Pediatrician who sent us to the ER. While being admitted to the hospital and waiting for a room my grandfather passed away. This isn’t shocking as Sickle Cell […]

10 Natural Supplements That May Benefit Sickle Cell Anemia Patients

I have been asked many times to share the list of Vitamins and Herbs we use to keep our Sickle Cell Warrior Dylan healthy.  Dylan is 4 years old and has been taking most of these for close to 2yrs or more.  These are the exact brands we use for his care.  I notice differences […]