Sickle Cell Anemia Awareness – Rare Disease Day 2019

Sickle Cell Anemia is considered a rare disease. It is an inherited blood disorder that impacts shape and health of red blood cells According to the CDC Sickle Cell Anemia affect approx 100,000 Americans

Sickle Cell Warrior Dylan Celebrates his 5th Birthday and 1 yr with NO Hospital Stays!!!

As I type this Dylan is sleeping in his room with his younger brother.  I think about how many times they’ve been separated because of Dylan’s countless hospital stays.  In fact when I was in labor with his younger brother Dylan was admitted into the hospital.  I gave birth on one floor of the hospital […]

The Memory of a Sickle Cell Warrior Princess and Beauty Queen Lives On Through Shak’s Hope

September is Sickle Cell awareness month and all over Facebook Sickle Cell Warriors and their families have changed their profile pictures to add awareness frames.  Warriors are sharing facts about Sickle Cell Anemia and discussions surrounding this “rare disease” are happening more and more frequently.  As we share facts about the disease itself we are […]